August 18, 2022

Well, well, well……..I have most definitely been MIA on here. Where do I begin???? First of all….I am going to be a GRANDMA in less than two months. My daughter and her love found out early on that this little bundle of joy is going to be a little girl. WE are all so very excited. She has had a really healthy pregnancy except one hiccup……she was yanking on her umbilical cord. That was a scary few weeks until the final ultrasound revealed that she is finally not so fascinated with her lifeline and my daughter is no longer considered high-risk. Thank you Lord in Heaven. I’m down to the last few months on my trial. In November I will have a full day of testing, evaluations, MRI, blood tests and a lumber puncture. Lumbar punctures are always my favorite!!!! NOT!!!! This one is going to be done in the lab with dye and ultrasound or something or other. In other words…..docs will not be going in blindly. I don’t think I can do that one again. I certainly hope this trial has worked or at least bought me some time until the next best thing comes along. I know that the bone marrow/stem cell transplant is still out there, but I really think I want to wait on this until insurance will approve it as a treatment and not just a trial. I don’t want that kind of bill. Right now I feel fairly strong and in a holding pattern….if there is such a label with MULTIPLE SCLEROSIS. It is summer and our little group/pod/tribe/posse of friends and family are regularly going to the rivers around here to kayak and enjoy time spent together. Life is too short to pass those little opportunities up. I have become a little lax with not drinking soda and caffeinated beverages as of late and I am here to tell you that I can feel it in my body. So I am going to go back to decaffeinated beverages and little to no soda …… except on special occasions. Hopefully I can regain that little bit of ground back. Our area has been in a drought this summer and we have had a very sad little vegetable garden, our flower beds have struggled and grass was all brown and crunchy….but we are finally getting blessed with a little rain here and there and things are looking a little better. The farmers in our area have had a really hard summer….pastures are all burnt up and hay fields are the same. Which really poses a huge issue for the upcoming winter. Many farmers have already had to start feeding their winter hay….not good. Until the rains started all the ponds were all dried up as well….which posed a huge problem for them as well. Hopefully we will continue to get the rains periodically and they will keep getting a little relief from all of that. So for now….that’s all I’ve got. I hope you have a blessed day!